"You are not alone, this journey is not just yours to bear."

After the diagnosis there is a whole new journey ahead and NO parent should ever have to walk that alone. Not during pregnancy, in post-partum, in the NICU, in grief or when it's time to go home, just in this fragile and unexpected time of your life in general. THIS is the space where we sit beside you.

No fixing. No Pressure. No Judging.

Just presence, gentleness, and truth. You are held here. Your voice echos and is heard.

 

Support 

After the diagnosis, every family's journey is different. No two cases, no matter how similar, are exactly alike. Although you may have a vision for how you want things to go, babies with special diagnoses often have a plan of their own in mind and us parents are just along for the ride. One of the most impactful things that were said to me after Aria's diagnosis was that "It's okay to grieve this journey. It's okay to grieve the pregnancy and delivery you thought you would have. It's okay to grieve what you feel this journey SHOULD have been. Grief isn't just for death, it's for loss. And that loss can be a plethora of things. Just don't sit in the Grief for too long, we don't want to stay there." No matter the path you and your child are walking, we are here to hold your hand and get you the resources and tools it takes to travel it as smooth as possible.

Support Offered:

  • One-on-one Calls, Chats, & Video Calls

  • Gentle Conversations, Validation, and a Safe Space to Process

  • Support Telling Family Members and Friends

  • Discussion Guides for Families, Friends, and Siblings. Tools to Help You Explain Things on Their Level

  • Spiritual & Grief Support Including Chaplain Communication and Prayer Chains

  • Crisis Support in the Event of an Emergency, We Will Make Ourselves Available to Talk 24/7

  • Help Understanding Medical Terminologies and Child Specific Diagnosis and What those May Mean for the Future

  • Connections to Resources, Financial Aids, Social Groups, and Trisomy Friendly Medical Providers  & NICUs

  • Writing Birth Plans & Post-partum Plans that Support Your Wishes, Explaining and Discussing Interventions (Maternal, Birthing, & Neonatal Interventions) Planning What You are Comfortable With for Your Child’s Care and What You Aren’t.

  • Home, NICU, & Travel Support

  • Journaling Tools and Memory-making Ideas

  • Milestone Celebrations